Can genetic profiling guide treatment decisions in PKD?
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what is pkd Informational
- Are there any online communities or support groups that can connect PKD patients with others who understand their experiences? What are the long-term psychological impacts of growing up with a genetic condition like PKD?
- Are individuals with PKD at risk of being denied coverage or facing higher premiums?
- How often should GFR be checked in PKD patients? How is blood pressure monitored in PKD patients?
- Are there opportunities to participate in research studies or clinical trials?
- How can we ensure equitable access to new and expensive PKD treatments?
- How much exercise is recommended for people with PKD? How does stress affect PKD?
- Is there an increased risk of heart valve abnormalities in individuals with PKD?
- Are there any international PKD registries? What are the ethical considerations in PKD genetic testing and screening?
- What are the options for renal replacement therapy in end-stage PKD?
- What are the recommendations regarding protein intake for individuals with PKD? How does increasing water intake potentially impact the progression of PKD?
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