What is the role of extended family and friends in providing support to families affected by ALS? 138

Jan 9, 2025 ... The National ALS Registry collects, manages, and analyzes data about people with ALS. The information comes from existing national databases and ... Feb 17, 2025 ... Having access to neurofilament light chain and the ALS Functional Rating Scale-Revised test results is informational to ALS patients. Jan 8, 2023 ... Where a party's failure to update contact information results in an electronic order or other correspondence from this administrative court ... Nov 16, 2023 ... Although data are preliminary, tofersen may offer hope to patients with familial ALS who have a mutation in the SOD1 gene. Since the drug was ... Feb 22, 2023 ... ... learning about the disease. The ALS Association provides information on current clinical trials and research efforts. How to Find Support ... for informational and educational purposes only. The information contained ... Learning that you or a loved one has Amyotrophic Lateral Sclerosis (ALS) can. Jan 9, 2019 ... ... informational tools for planning and assessing actions on forest management and conservation. ... We developed a method using ALS data combined ... Jul 8, 2024 ... What informational or supportive needs do they have for counselling ... We conducted a qualitative interview study with 13 people with ALS in ... DEMRS provides services to all private/public/volunteer EMS/ALS/BLS services including but not limited to: ... Informational Links: Delaware State Bridge ... National Amyotrophic Lateral Sclerosis (ALS) Registry Research Application Form. Type of Request* (Mark all that apply) Research notification Data Biospecimens ...