How can the quality of life be maximized for individuals with ALS who rely on alternative feeding methods? 157

In response to many patient and colleague requests, ALS Worldwide has created an informational ID and emergency room card that can assist those with ALS ... Visit the Amyotrophic Lateral Sclerosis (ALS) Association website for information about Lou Gehrig's Disease, resources and news for patients, family, ... ... data essential for such research. ALS researchers are invited to apply for tissue and data collected from Veterans with ALS. For a current description of ... Feb 22, 2023 ... ... learning about the disease. The ALS Association provides information on current clinical trials and research efforts. How to Find Support ... Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under 'CRF Module/Guidance' on each disorder's data standards ... Answer ALS Collection · Lothian Birth Cohort · NIH HD Consortium · SMA ... informational purposes only and not by way of endorsement, recommendation or approval. On May 6th, join ALS TDI and Her ALS Story (HAS) for Why Me? ... The Power of Your EHR Data in ALS Research. Recording coming soon... April 29 ... Mar 10, 2016 ... Northeast ALS Consortium website and informational letters to patients with ALS at University of Rochester included basic study information ... Genetics - About 10% of cases are inherited. Mutations in genes like SOD1, C9ORF72, TARDBP, and FUS can cause familial ALS. Environment - Smoking, heavy metals, ... How do people with amyotrophic lateral sclerosis (PALS) deal with their diagnosis and engage in end-of-life decision-making? What informational or ...